Services and Rates
Effective
7/1/2019
By Their Side is a family-funded 501(c)(3)
charitable organization guided by a volunteer Board of
Directors comprised of parents, siblings,
professionals, and community members. Rates are set by
the Board to assure By Their Side remains in a position
to fulfill its committment to provide lifelong advocacy
for its members. The Board monitors conservative
investment of membership fees and conducts periodic
actuarial assessments to determine current rates.
1.
Lifelong Advocacy Service
The Lifelong Advocacy Service
provides By Their Side members, after their sponsors
become incapacitated or pass away, with an annual
assessment visit and follow up to address identified
concerns. Upon enrollment, By Their Side meets with the
family to document individual history, needs,
preferences, and specific advocacy concerns. After the
sponsors are gone, an experienced advocate is assigned
who makes an annual visit, typically at the time of the
annual planning meeting. The advocate follows up to
identified concerns, and an update report including
identification of financial needs if any is provided to
sibling, trustee, or other representative. This annual
service continues for the lifetime of the
member.
In 1984,
John's parents enrolled him in By Their Side to ensure
John received lifelong advocacy when they were gone.
Each year since his parents passed away, John's
advocate has attended his annual planning meeting or
visited John at home. The informaton gathered from
John's parents has helped guide John's advocate and
ensure continuity in his life. His advocate asks for
update on health issues and suggests weekend outings
and vacations reflecting John's interests. When his
residential staff change, his advocate provides vendor
information to replace John's specialized shoes, and
assures he continues to have the opportunity to play
bocce ball, a favorite activity. She provides updates
to John's brother, and is available for questions or if
he should decide to arrange additional monitoring
visits through an Advocacy
Plan.
The one-time fee is payable within two years. A $50
annual fee is additionally required while the sponsor
is living.
Rates as of July 1, 2019:
$3500 for sponsors under 70
years of age;
$4000 for sponsors 70+;
$1800 for sibling
sponsors. Because lifelong services being upon the
passing of the sibling sponsor, an age peer, this
service primarily offers the benefit of a safety net
and access to reduced rates for Advocacy Plan
services.
2.
Annual Advocacy Plans
A. A family, trustee, or other representative may
contract for an annual Advocacy Plan that specifies for
the year: 1) the number of visits , 2) the frequency of
monitoring contacts with service providers, 3) advocacy
at meetings 4) Follow up to concerns, review of
reports, consultation and reports to family or Trustee.
The contract may be renewed or modified on an annual
basis.
Mary is an only child. Her
parents enrolled her in By Their Side years ago, and
when they reached their 70's, they started an Advocacy
Plan so that an advocate would be assigned, get to know
Mary, and attend her planning meeting while they were
still here to provide guidance. Later, as they were
less able to travel, Mary's parents expanded her
Advocacy Plan to include 3 additional visits and
monitoring contacts each year, with reports back to
them. Mary's parents are pleased with the advocacy
provided and feel Mary will be well looked after after
they are gone, through Advocacy Plan services renewed
annually by Mary's trustee.
John's trustee arranged for
bimonthly visits through an advocacy plan when he first
began to receive residential services, to monitor
closely and assure his needs were met. His advocate
addressed overdue medical care and arranged necessary
evaluations to identify full and proper supports. She
assisted to identify a new provider agency when his
guardian decided a move was needed, and arranged
vocational experiences reflecting his preferences.
B. A family may wish to arrange
an Annual Advocacy Plan that provides an advocate to
work with them for the year to help address a specific
advocacy need or goal. This service may include
assessment visits, consultation, attendance at planning
meetings, and/or follow up contacts, and is billed on
an hourly basis.
- Attending
a team meeting with parent to address concerns with
lack of work opportunities and help develop plans
for alternatives
- Gathering
additional information to support a reconsideration
of denial of state funding in a crisis
situation
- Assisting
a sibling to identify a new vocational agency
because her brother's needs have
changed.
Rate for Advocacy Plan Services Effective July 1,
2019:
Members
enrolled in the Lifelong Advocacy
Service: $85.00/hour and $0.58/mile travel
expense.
Non-members:
$100.00/hour and $0.58/mile travel expense..
Note: Someone with an
intellectual/developmental disability with no remaining
family and who is not a member may access member
rates for Advocacy Plan Services for a fee of $800, to
be applied to intake assessment visit, file reviews at
programs, interviews and related intake activities.
Advocacy plans may be billed on an hourly basis for
actual time spent, or on package basis which provides
member discounts for a pre-set cost, as below.
.
All plans include follow
up to concerns, review of reports, consultation
and update reports to family or
Trustee.
SAMPLE ADVOCACY PLAN
PACKAGES
|
|
ANNUAL
MEMBER COST
______________
ANNUAL COST WITH MONITORING
Applied DISCOUNT (%)
|
VISITS/YEAR
|
MONITORING CONTACTS/YEAR
|
ADVOCACY AT TEAM MEETINGS
|
INDIVIDUAL PLAN
ADVOCACY
Advocate prepares for and advocates at the
annual Individual Plan (IP) meeting
|
|
$460
No Charge after sponsors are deceased.
|
0
|
0
|
Attends
Annual Individual Planning (IP) Meeting
|
SEMI ANNUAL VISITS
Advocate attends
annual IP meetings makes 1 additional visit
during year ________________________________
With quarterly
monitoring contacts to provider agencies
|
|
$750
______________
$930
(7.5%)
|
1
_____________________
1
|
0
_________________
4
|
Attends
IP Meeting
____________________
Attends IP Meeting
|
QUARTERLY
CONTACT
Advocate attends
all team meetings, makes 3 additional visits
_____________________________
With
quarterly monitoring contacts
to provider agencies
|
|
$1275
($10%)
_______________
$1525
($10%)
|
3
____________________
3
|
0
_________________
12
|
Attends
All Team Meetings
______________________
Attends All Team Meetings
|
BIMONTHLY
CONTACT
Advocate attends all team meetings, makes 5
additional visits
_____________________________
With monthly monitoring
contacts to provider agencies
|
|
$1875
(10%)
_______________
$2375
(10%)
|
5
_____________________
5
|
0
_________________
4
|
Attends
All Team Meetings
_____________________
Attends All Team Meetings
|
MONTHLY
CONTACT
Advocate attends all team meetings, makes 11
additional visits
______________________________
With monthly monitoring
contacts to provider agencies
|
|
$3600
(12.5%)
________________
$4050
(12.5%)
|
11
______________________
11
|
0
___________________
4
|
Attends
All Team Meetings
________________________
Attends All Team Meetings
|
TAILORED
ADVOCACY PLAN
|
|
Cost
To Be Determined
|
As
selected by family or representative
|
As
selected by family or representative
|
As
selected by family or representative
|
|