Services and Rates

Effective 7/1/2019

By Their Side is a family-funded 501(c)(3) charitable organization guided by a volunteer Board of Directors comprised of parents, siblings, professionals, and community members. Rates are set by the Board to assure By Their Side remains in a position to fulfill its committment to provide lifelong advocacy for its members. The Board monitors conservative investment of membership fees and conducts periodic actuarial assessments to determine current rates.

1. Lifelong Advocacy Service

The Lifelong Advocacy Service provides By Their Side members, after their sponsors become incapacitated or pass away, with an annual assessment visit and follow up to address identified concerns. Upon enrollment, By Their Side meets with the family to document individual history, needs, preferences, and specific advocacy concerns. After the sponsors are gone, an experienced advocate is assigned who makes an annual visit, typically at the time of the annual planning meeting. The advocate follows up to identified concerns, and an update report including identification of financial needs if any is provided to sibling, trustee, or other representative. This annual service continues for the lifetime of the member.

In 1984, John's parents enrolled him in By Their Side to ensure John received lifelong advocacy when they were gone. Each year since his parents passed away, John's advocate has attended his annual planning meeting or visited John at home. The informaton gathered from John's parents has helped guide John's advocate and ensure continuity in his life. His advocate asks for update on health issues and suggests weekend outings and vacations reflecting John's interests. When his residential staff change, his advocate provides vendor information to replace John's specialized shoes, and assures he continues to have the opportunity to play bocce ball, a favorite activity. She provides updates to John's brother, and is available for questions or if he should decide to arrange additional monitoring visits through an Advocacy Plan.

The one-time fee is payable within two years. A $50 annual fee is additionally required while the sponsor is living.

Rates as of July 1, 2019:

$3500 for sponsors under 70 years of age;

$4000 for sponsors 70+;

$1800 for sibling sponsors.  Because lifelong services being upon the passing of the sibling sponsor, an age peer, this service primarily offers the benefit of  a safety net and access to reduced rates for Advocacy Plan services.

2. Annual Advocacy Plans

A. A family, trustee, or other representative may contract for an annual Advocacy Plan that specifies for the year: 1) the number of visits , 2) the frequency of monitoring contacts with service providers, 3) advocacy at meetings 4) Follow up to concerns, review of reports, consultation and reports to family or Trustee. The contract may be renewed or modified on an annual basis.

Mary is an only child. Her parents enrolled her in By Their Side years ago, and when they reached their 70's, they started an Advocacy Plan so that an advocate would be assigned, get to know Mary, and attend her planning meeting while they were still here to provide guidance. Later, as they were less able to travel, Mary's parents expanded her Advocacy Plan to include 3 additional visits and monitoring contacts each year, with reports back to them. Mary's parents are pleased with the advocacy provided and feel Mary will be well looked after after they are gone, through Advocacy Plan services renewed annually by Mary's trustee.

John's trustee arranged for bimonthly visits through an advocacy plan when he first began to receive residential services, to monitor closely and assure his needs were met. His advocate addressed overdue medical care and arranged necessary evaluations to identify full and proper supports. She assisted to identify a new provider agency when his guardian decided a move was needed, and arranged vocational experiences reflecting his preferences.

B. A family may wish to arrange an Annual Advocacy Plan that provides an advocate to work with them for the year to help address a specific advocacy need or goal. This service may include assessment visits, consultation, attendance at planning meetings, and/or follow up contacts, and is billed on an hourly basis.

• Attending a team meeting with parent to address concerns with lack of work opportunities and help develop plans for alternatives
• Gathering additional information to support a reconsideration of denial of state funding in a crisis situation
• Assisting a sibling to identify a new vocational agency because her brother's needs have changed.

Rate for Advocacy Plan Services Effective July 1, 2019:

Members enrolled in the Lifelong Advocacy Service: $85.00/hour and $0.58/mile travel expense.

Non-members: $100.00/hour and $0.58/mile travel expense..

Note: Someone with an intellectual/developmental disability with no remaining family and  who is not a member may access member rates for Advocacy Plan Services for a fee of $800, to be applied to intake assessment visit, file reviews at programs, interviews and related intake activities.

Advocacy plans may be billed on an hourly basis for actual time spent, or on package basis which provides member discounts for a pre-set cost, as below.

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